Monday, December 27, 2010

Winter Wonderland

We didn't have a white Christmas, but the day after it started to snow about 11 am, and now we are enjoying a Winter Wonderland!!
My Pink Snow Bunny




Hey - This stuff is pretty fun!


Sunday, December 26, 2010

Ours Was Merry...

Hope yours was too!!!

Wednesday, December 22, 2010

A Last Ditch Plea...

After screaming her head off the last time she met Santa, Anna decided that she had better "make nice" before it was too late.

We were at the mall today, and not planning to visit with Santa, let alone take pictures. We were just going to wave from the sidelines. But, Anna was jumping out of her seat to go see him, so how could we resist?

Look at the joy on her face!

Too bad Mommy didn't think to comb her hair or dress her in jeans w/o grass stains on them.

Paige was also quite stoked to see the Big Man.  It was fun to see/hear her talking to him with the true belief that only a child can have.

We shall see if their efforts to kiss up to the Big Man has paid off.  I'm sure it has =)

Monday, December 13, 2010

Charlie's Winter Concert 2010

There is nothing cuter or funnier than elementary school concerts.
Here is a quick snippet of Charlie's performance.  He is the handsome boy with the red sweater vest in the middle of the front row. =)


I think the kids did a great job of singing Mele Kalikimaka, but I still think Jonathan's and my performance from a couple of years ago takes the cake =)


Ha! Merry Christmas!!

Sunday, December 12, 2010

Warm Up the Bus!

Anna is just over 2 1/2 yrs. old.  She will turn 3 on Friday, April 15, 2011.

She just started walking about 2 weeks ago. (And she is doing so well with walking now -- pretty much walks 90% of the time vs. crawling. But more on this later).

Anna is tiny. (Ok, she is actually pretty big for her age - and actually huge for a child her age with Down syndrome - but she is still tiny in my eyes.)

Anna doesn't talk. (Yet - we know it is coming...eventually.)

Anna is very much a Mama's girl.  She does not like it when I leave.

So, you can imagine my heart when I was told during our meeting with the local school representative that Anna will take a bus to pre-school starting in April.

I am having a hard time picturing it, and therefore, I am glad that I have 4 months to prepare myself for that day.  Anna has no clue that she is going to be going to school.  I just keep picturing the bus pulling up to our house, me putting her on the bus and waving good-bye.  And I can only imagine what will be going through her mind about where she is going and why Mommy isn't going with her.  Oh, what an adventure it will be!

Actually, though, we are very excited about the program that Anna will be entering. It sounds like they have a great program, and we have heard nothing but good things from other parents' whose children have been through the program.  She will get all her therapies at school in addition to "academics", and socialization and friends. =)

She will go to school 5 days/wk from 8:30-10:30.  Because the pre-school is located in the elementary school on the other side of town, she will take a bus to and from school.

They do have extended school year which runs for about 4 weeks in summer.

Anna will start in April, but not on her birthday.  Her birthday falls on a Friday, and the following week is our spring/Easter break. So, we will start her after that.

This year (Spring 2011), and next year (2011-2012), she, and the other 3-yr. olds will go from 8:30-10:30.  The following year (2012-2013) when she is 4, she will go from 10:30-2:30pm (still busing across town - which really isn't that far).  Then, when she is 5, and hopefully ready for kindergarten, she will be going to the same school as Charlie and Paige (no bus) 8:30-3:00 pm.

We have our next meeting, our "Eligibility Meeting", scheduled for Friday, January 7.  I thought her extra-chromosome made her a shoe-in, but apparently not. She still has to go through all the evaluations.

So, between now and April, I am going to have to some serious prepping for that inevitable day.  I wasn't teary for Charlie or Paige, but I am pretty sure the sight of Anna getting on the bus will just about do me in.

Warm up the bus!!

Monday, December 6, 2010

Three Weeks Mashed into One Post

I have been busy (or so that is my excuse), so I am going to try to mash about three weeks worth of posts into one...

First, Anna went for her annual check-up with the Cardiologist just before Thanksgiving.  Basically, her status is "No Change" - which is a good thing.  Anna has a small coronary fistula (coronary artery dips back into one of the chambers), but the Dr. sees no reason the be concerned.  At this point, we monitor once per year and take antibiotics for dental work.  That we can handle!

Anna had a follow-up with her pediatric ophthalmologist today.  Her eye looks good -- or good enough, at least.  There is still a little tearing in the right eye, but nothing like it used to be when we had to use a warm washcloth each morning just to get the eye open from all the gunk.  A vast improvement that we will take!  I am hoping that this silly issue finally behind us

And the fun thing we have going on -- Anna and I just started Kindermusik!  We go on Wednesday mornings.  The girl loves her music, and now that she is vertical, I think she is going to love dancing as well! =)  Look for more posts, and hopefully some pictures,  on this topic. =)

Did I mention we got a new computer?  It has a built in camera, and Anna loves to sit on our laps and watch herself on the computer screen.  Here is a cute little video Anna and her Daddy made one night while the Bigs and I were out.


We were supposed to be going for a fitting for new orthotics this week, but they called us to tell us that our insurance only covers new orthotics once every three years?!  An okay rule for someone over 18... but a 2-yr. old?  They said all we need is a note from our doctor stating that she needs new orthotics because she has outgrown her old ones (ya' think?  She has gone from a size 4 last January to a 7 now).  Just a minor bump in the road, but I was really hoping to get them in under this year's already met deductible.  No such luck.

We have Anna's 6-month IFSP on Thursday...Her final IFSP before she starts pre-school in April.  Also on Thursday we have our first transition planning meeting with our service coordinator and a representative from the local school district.  I am not anticipating any issues, but am nervous, none-the-less.  I can't believe Anna is less than 6 months away from going to pre-school!

And so go the days of our lives...Crazy Wonderful!! =)

Saturday, December 4, 2010

DSG Christmas Party!

Today was the annual Christmas Party for the DSGNWNJ.  We were very excited to attend this fun event, and it is getting more fun each year because we are getting to know more and more people.

Of course, I forced my kids to try to take pictures before the party.  We managed an okay one -- but not too bad when you consider it was well past Anna's naptime.



The party was hoppin' with music and dancing.  But, Anna was queen of the dance floor as she strutted around and showed off her new walking skills!!


Too much dancing...need a drink!

Then...the Big Man came!!  Oh, the excitement!!

Patiently awaiting Santa's arrival

And the terror!!!   Anna was not too thrilled with Santa, but again, it was well, well, past her naptime at this point.

Charlie and Paige, on the other hand, were quite cozy with Santa.  They seem to think they have been good this year...we'll see!



And finally, we tried to get a picture of all the kids with Down syndrome around this lovely, and yummy cake that made and donated by The Cake Boss.  As you can imagine, it was a bit of a fiasco =)  But, we managed to get Anna to sit for a few minutes.

 By then, she was completely wiped out.

Can't wait for next year's party!!